罗伯特.米勒教授（Robert G.Miller），美国旧金山?Forbes Norris MDA/ALS 研究中心主任（隶属于Pacific California Medical Center），世界著名的神经病学专家，ALS国际权威学者。2005年，米勒教授出版专著《Amyotrophic Lateral Sclerosis》，详细介绍了ALS的诊断、治疗及临床症状控制等，书中米勒教授表达了很多重要观点，对我们正确认识ALS将大有裨益。
观点一：ALS is a treatable disease even though it is not curable
观点二：It is important for an individual facing ALS to look for hopeful?aspects
观点三：We now have one drug‚ Rilutek?‚ which slows the progression of ALS‚particularly if it is given early in the course of the disease.The drug was initially tested in patients with relatively severe‚ advanced ALS‚ and only a few months of prolonged life was observed. Subsequent studies in which the drug was started much earlier have shown more substantial benefit. The drug is safe and well tolerated‚ although expensive. The search is underway to find other drugs that‚ in combination with Rilutek?‚ will really put the brakes on ALS.
观点四：Providing the very best standard of health care management is essential for all patients with ALS
观点五：In recent years‚ there has been an increasing interest in understanding the effects of ALS‚ and its potential treatments‚ not only on quantity of life (survival)‚ but also quality of life......Patients
taking riluzole stay in a milder disease state for a longer period of time.
观点六：Maintaining good nutrition is one of the greatest challenges of living with ALS
观点七：Plan to maintain your usual weight.If you feel you are overweight‚ do not diet to lose weight‚ because it may become
more difficult to eat later on.
观点八：Consume at least eight cups of fluid daily.
观点九：Maintaining the ability to communicate is essential.
观点十：Assistive technology is any strategy‚ equipment‚ modification‚ or technology that improves or restores ability to those with impaired function.